I know I haven’t blogged for a bit, and I don’t really have good excuses other than my life to me at least seems boring. I just spent the last three days at the Ohio Music Educators Association annual conference. I gave a session on Google Tips and Tricks that was well received, so that… Continue reading Four Elevators and a Lift
Category: Disability Advocacy
Shopping in a store is not all it’s cracked up to be…
Finally, a rainy day in the midwest. Every year I like to get a new outfit or two to add to my school collection, and cycle out some older things. We do have a tax holiday in Ohio, but Macy’s seems to give things away frequently and today was no different. I wanted to take… Continue reading Shopping in a store is not all it’s cracked up to be…
Assessments and Things
Sometimes squeaky wheels and talking about things get the grease, and that certainly happened after I posted about the Paperwork Blues last week. I finally feel as if things are moving again, even though things are still agonizingly slow. Thing number one is my wheelchair finally got processed to order. I am still awaiting an… Continue reading Assessments and Things
An excursion on my own
Last week during the big heatwave I had my first excursion on my own without my parents around to rescue me since January. I attended the OEA Leadership Summer Conference in Columbus. This was a good test to see if I can function on my own with my new handicapped status, as it was all… Continue reading An excursion on my own
The Secret Is Out….
So the secret is out, yes I can walk, some. This post has been percolating in my head for a good long while, and while yes, my walking has gotten better in the last four months, the fact is that long term as I have said before on this blog is that I will be… Continue reading The Secret Is Out….
A post about pee
After being rescheduled, I finally had my urodynamic study done yesterday. This test was to give some insight on to what is happening with my bladder and how I can best manage it going forward. First, this test involves them manually filling your bladder, and is somewhat invasive. You also have to get fully dressed… Continue reading A post about pee
Driving Part Deux
It figures on the first stormy, rainy day I would have my in-car evaluation but that is the way things go sometimes. We left the house in some rain and while I was in the waiting room it started to pour. Oh well, in Ohio one must drive in the rain so I got that… Continue reading Driving Part Deux
Wheelchairs and Things
Today was another huge appointment, the meeting with OT and and National Seating and Mobility to finalize the paperwork of my new made to me chair. The timeline above lists that I can expect my chair anywhere between 2-6 months. Nick from National Seating and Mobility thinks I should be on the shorter end of… Continue reading Wheelchairs and Things
Care Management is a full time job.
As I sit here starting Bridgerton Season 2 (yes Kristen, I have started it and we will need to debrief) I feel like I am the Lady Whistledown of my own life. So much to tell people, and debrief on, and yet, I don’t want to Facebook/Instagram post every day. My blog is my semi-incognito… Continue reading Care Management is a full time job.
Studies have shown having a routine is important for most people, and most people fall into a routine. My routine has changed a couple of times this year already, from my 40+ hour a week grind with school, to the crazy hospital routine, to the rehab hospital routine, to what I am on currently which… Continue reading Routine…